Evaluation of loneliness and its associated factors in caregivers of patients with dementia: a cross-sectional study
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Objective:
To identify the levels of loneliness and the factors associated with the prevalence of loneliness in caregivers of patients with dementia.
Methods:
An observational cross-sectional study was conducted, including unpaid caregivers of patients with dementia who were receiving home care in Bogotá, Colombia. The prevalence of loneliness was estimated using the UCLA Loneliness Scale. Participants were also assessed regarding their satisfaction with providing care and whether they felt they received the necessary emotional support from family and friends. The association between loneliness and the patient's clinical variables, as well as the sociodemographic characteristics of the caregiver, was evaluated by calculating the odds ratio (OR) between the groups.
Results:
A total of 52 caregivers of patients with dementia were included. Severe loneliness was present in 5.77% of caregivers, while 26.92% experienced moderate loneliness. All caregivers reported feeling satisfied with providing care to their relatives, and 71% felt that their family or friends provided the emotional support they required. Loneliness was more common among caregivers of patients with total functional dependence (OR 4.061, P = 0.0278). Conversely, the perception of receiving emotional support from family and friends was identified as a potential protective factor against loneliness (OR 0.184, P = 0.0104).
Conclusions:
The prevalence of loneliness in this study is lower than that reported in previous studies. All caregivers reported satisfaction in providing care; most perceived adequate emotional support from family and friends. These factors could be contributing to the lower prevalence of loneliness observed.
- Caregivers
- Loneliness
- Dementia
- Alzheimer Disease
- Home Care Services
- Quality of life
Angie Nathalia Hernandez Rico, a:1:{s:5:"en_US";s:61:"Universidad de la Sabana
https://orcid.org/0000-0003-4545-0999
Bibiana Flórez Vargas, Universidad de la Sabana
Santiago Guadarrama Vega, Universidad de la Sabana
https://orcid.org/0000-0001-9354-6085
Carmen-Juliana Pino-Pinzón, Universidad el Bosque, Forja empresas
https://orcid.org/0000-0002-5308-7141
Claudia Patricia Agamez Insignares, Instituto Nacional de Cancerología, Forja empresas
https://orcid.org/0000-0002-7117-7204
Gaugler JE, Kane RL, Kane RA. Family care for older adults with disabilities toward more targeted and interpretable research. Int J Aging Hum Dev. 2002;54(3):205-231. https://doi.org/10.2190/FACK-QE61-Y2J8-5L68 PMid:12148687 DOI: https://doi.org/10.2190/FACK-QE61-Y2J8-5L68
Livingston G, Huntley J, Sommerlad A, Ames D, Ballard C, Banerjee S, et al. Dementia prevention, intervention, and care: 2020 report of the Lancet Commission. Lancet. 2020; 396(10248): 413-446. doi: 10.1016/S0140-6736(20)30367-6.
https://doi.org/10.1016/S0140-6736(20)30367-6 DOI: https://doi.org/10.1016/S0140-6736(20)30367-6
PMid:32738937
The Alzheimer's Association. Alzheimer's disease facts and figures. Alzheimers Dement. 2021; 17(3): 327-406 https://doi.org/10.1002/alz.12328 PMid:33756057 DOI: https://doi.org/10.1002/alz.12328
Lei L, Maust DT, Leggett AN. Functional decline over time and change in family and other unpaid care provided to community-dwelling older adults living with and without dementia. J Gerontol B Psychol Sci Soc Sci. 2023; 78(10): 1727-1734. https://doi.org/10.1093/geronb/gbad107 PMid:37527557 PMCid:PMC10561879 DOI: https://doi.org/10.1093/geronb/gbad107
Victor CR, Rippon I, Quinn C, Nelis SM, Martyr A, Hart N, et al. The prevalence and predictors of loneliness in caregivers of people with dementia: findings from the IDEAL programme. Aging Ment Health. 2021; 25(7): 1232-1238. https://doi.org/10.1080/13607863.2020.1753014 PMid:32306759 DOI: https://doi.org/10.1080/13607863.2020.1753014
Ong AD, Uchino BN, Wethington E. Loneliness and Health in Older Adults: A Mini-Review and Synthesis. Gerontology. 2016; 62(4): 443-9. https://doi.org/10.1159/000441651 PMid:26539997 PMCid:PMC6162046 DOI: https://doi.org/10.1159/000441651
Carreño-Moreno S, Chaparro-Díaz L, Cáliz Romero NE, Rivera Romero N. Validez de la escala de soledad UCLA en cuidadores de pacientes crónicos en Colombia. Investigación Enfermería Imagen Desarrollo. 2022; 24. https://doi.org/10.11144/Javeriana.ie24.vesu DOI: https://doi.org/10.11144/Javeriana.ie24.vesu
Mahoney FI, Barthel DW. Functional evaluation: The Barthel Index. Md State Med J. 1965; 14: 61-5 https://doi.org/10.1037/t02366-000 DOI: https://doi.org/10.1037/t02366-000
Reisberg B, Ferris SH, de Leon MJ, Crook T. The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982; 139(9): 1136-9. https://doi.org/10.1176/ajp.139.9.1136 PMid:7114305 DOI: https://doi.org/10.1176/ajp.139.9.1136
Liao X, Wang Z, Zeng Q, Zeng Y. Loneliness and social isolation among informal carers of individuals with dementia: A systematic review and meta-analysis. Int J Geriatr Psychiatry. 2024; 39(5): e6101. https://doi.org/10.1002/gps.6101 PMid:38752797 DOI: https://doi.org/10.1002/gps.6101
Peavy G, Mayo AM, Avalos C, Rodriguez A, Shifflett B, Edland SD. Perceived stress in older dementia caregivers: mediation by loneliness and depression. Am J Alzheimers Dis Other Demen. 2022; 37: 1-8. https://doi.org/10.1177/15333175211064756 PMid:34986661 PMCid:PMC10580727 DOI: https://doi.org/10.1177/15333175211064756
Musich S, Wang SS, Kraemer S, Yeh CS. The association of psychological protective factors with caregiver mental health outcomes. Geriatr Nurs. 2023; 50: 174-180. https://doi.org/10.1016/j.gerinurse.2023.01.020 PMid:36791542 DOI: https://doi.org/10.1016/j.gerinurse.2023.01.020
Ayuso MS, Rodríguez ÁN. Valoración de enfermería para la evaluación de sobrecarga del cuidador en atención domiciliaria. Horizonte Sanitario. 2018; 17(3): 179-87. https://doi.org/10.19136/hs.a17n3.2147.
National Academies of Sciences, Engineering, and Medicine. Social isolation and loneliness in older adults: opportunities for the health care system. Washington, DC: The National Academies Press; 2020: 77-78. https://doi.org/10.17226/25663 PMid:32510896 DOI: https://doi.org/10.17226/25663
Cejalvo E, Martí-Vilar M, Merino-Soto C, Aguirre-Morales MT. Caregiving role and psychosocial and individual factors: A systematic review. Healthcare (Basel). 2021 9(12): 1690. https://doi.org/10.3390/healthcare9121690 PMid:34946416 PMCid:PMC8700856 DOI: https://doi.org/10.3390/healthcare9121690
Parra OLM. La atención domiciliaria en los sistemas de salud de México, Argentina, Brasil y Colombia. Trabajo de grado. Universidad de Ciencias Aplicadas y Ambientales: Bogotá, Colombia; 2017.
Schaffler-Schaden D, Krutter S, Seymer A, Eßl-Maurer R, Flamm M, Osterbrink J. Caring for a relative with dementia: Determinants and gender differences of caregiver burden in the rural setting. Brain Sci. 2021; 11(11): 1511. https://doi.org/10.3390/brainsci11111511 PMid:34827510 PMCid:PMC8615550 DOI: https://doi.org/10.3390/brainsci11111511
Poisson VO, Poulos RG, Withall AL, Reilly A, Emerson L, O'Connor CMC. A mixed method study exploring gender differences in dementia caregiving. Dementia (London). 2023; 22(8):1862-1885. https://doi.org/10.1177/14713012231201595 PMid:37740743 PMCid:PMC10644690 DOI: https://doi.org/10.1177/14713012231201595
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